It's been a few weeks. No news to report at this time, really. What's happening is - we are truckin right along! Same ol' same ol'. I never did make that photo entry detailing the steps, nor the video. The idea is definitely not gone - just hasn't happened. Yet! Oh that crazy TIME - - always getting away from me.
No more cracks in the syringes. I'm sure it was direct contact with the FreezPaks. Also, no more constipation. Or if it seems he's not gone in a few days, he figures it out pretty soon. Have not gone FOURTEEN days like we did with a med change.
Have not noticed increased nasal sucretions with the addition of milk, so milk, for now, is a go. That is helpful. We are getting a LOT of it, through WIC, and it's a good liquid base to every meal.
Had a check up appointment with Hank's cardiologist about a week ago. As he was running thru the list of current meds, i kept saying "nope, not anymore." Finally he said, "what?... not even Peptamen Jr? Is he eating by MOUTH already?" I explained the blended diet switch. Dr. Miga was nodding happily and saying, "well, clearly it's doing him GOOD. This is the best i've ever seen him in his life." And that is true. Unfortunately, Hank's oxygen saturation levels were at their lowest, but that is due to his heart, not his diet. Corrective surgery options are currently being discussed and in as soon as two weeks, may know a "Game Plan." I'm not jumping up and down about this... but i know it has to happen.
Funny story to end on: I had a bowl of my closet caps (now deemed SYRINGE caps) sitting in hot water near the kitchen sink. I went to turn the hot water on, and hit the bowl in JUST the right way that all the caps and water swiftly poured right into the drain! BROTHER! And we have a pig, which had not been turned on in a while, so i was pulling out gunks of foodstuffs along with a random cap. I think i got em all. Yuck!
A note about cleaning the caps: I do not clean them all the time. In fact, if i give Henry a feed, and refill the syringe right after i'm done, i just recap it. But if they've been sitting around, i do pour a bowl of HOT water (not boiling, though that might not be a bad idea) and a little dish soap (natural) and stir em around and let em soak. Then i drain, and take q-tips and clean each one out. It's meticulous and a little time consuming, but it assures that all residue is removed - it can HIDE in there!
......... Turns out i DID have stuff to say. I'm rarely at a loss...
Til next time....
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